michiganpulmonarydiseasecommunity

There are big changes coming for MPDCI we're excited at the things to come.  Though the group is HQ'ed out of Michigan, this site will be expanded to be an active resource for many Cystic Fibrosis Families.
It will take a bit of time, but expect to see an expansion of the site over the next 6 months.  If you'd like, register and sign up for our Quarterly Bulletin to see what we're doing in the community. 
In the mean-time if you are a CF Patient or Parent with concerns or fears with the disease.  Please don't hesitate to e-mail me: jpinard@mpdci.org or the group info@mpdci.org  The staff is comprised of nurses, respiratory therapists, parents of CF'ers of all ages, and a lung transplant recipient. One of the greatest gifts we can give, is comfort and support in times of need.   
If you're reading this, you've seen some newly authored posts from myself.  I'm hoping to bring some of this new content to you.  I'm a 41 year old CF patient who was a member of the University of Michigan/Howard Hughes Medical Institute, and was a sponsosred fellow in the search for the Cystic Fibrosis gene.  I was part of the team that isolated and identified it on Chromosone 7 and it's primary defect as the delta F508 amino acid deletion.  We then went on to isolate the function of the related protein as a be a transmembrane regulator with roles involving the NA+ Cl- and Ca++ ions.  I have a unique view of CF from a research, clinical, and patient perspective.