Membership Information
Dear Members and future Members:
Our ability to continue to be an effective, caring advocacy organization for children and adults with Cystic Fibrosis is dependent on the help and support we derive from our generous membership.
The following are areas that we have expanded into, for the year 2007:
- We will continue with the In-Hospital CARE Packages - These packages will brighten the day of those children in the hospital.
- CARE Packages will be mailed twice a year in the Spring and Fall.
- Emergency Assistance funds for CF centers - These funds will be designated to help people with CF and their unmet needs Renewing and building relationships with the CF Care centers and CF Foundation Hiring a part-time staff person to help MPDCI run more smoothly as an organization.
- Advocacy - Becoming advocates for children and adults with Cystic Fibrosis in assuring that all receive the best healthcare they can. (Efforts to eliminate the language from budgetary bills in both House and Senate, to remove adults from the Children's Special Healthcare Program)
Once we have established the above additional services and make sure that the services we have provided in the past are being provided in an efficient timely manor, we will attempt to expand in some areas that we were told there was a need for at the Symposium of 2004. The following are areas we would like to expand to by the end of the year 2006:
- Web Site - redesign, make child friendly, add chat room, add educational links, articles. Public Service Announcements - TV, Radio, Newspaper to raise public awareness of CF and the services we provide. Volunteer program - Improved utilization and oversight.
- Support Groups - provide emotional support and education to empower families where there is a need.
If you are interested, please contact info@mpdci.org.
If you are a member, please consider renewing your membership.